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Thymic Malignancy Awareness Month Roundup 2023

Thymic Malignancy Awareness Month Roundup 2023

Another successful Thymic Malignancy Awareness Month has come to an end. Established by the International Thymic Malignancy Interest Group (ITMIG) in 2022, this year’s second edition continued our joint efforts to put the spotlight on thymic malignancies.

So what happened?  Let’s take a look with our roundup.

 

More People Became Aware of ThymicUK

Increasing numbers of those affected by thymic malignancies in the UK are joining our support group and mailing list; this means more people can now receive support from our wonderful community and information to help them on their journey.

 

ThymicUK Hosts in-Person Patient Meeting

The first in-person meeting post-pandemic was held at Guy’s Cancer Centre in London. It featured talks from an oncology dietician and physiotherapist with the opportunity for attendees to ask questions. The meeting also provided space for them to share experiences and socialise. For many, this was the first time they had met anyone else in-person with the same rare malignancy.  Attendees were very supportive to one another and the information, guidance and support shared was greatly appreciated by all.
Summaries of the talks:

Eating well with thymic cancer

ITMIG Hosted Well-Received Informational Webinars

The International Thymic Malignancy Interest Group (ITMIG) hosted a series of webinars throughout the month of May, which were well received by ThymicUK members who found them valuable and insightful.

Topics included:

  • Clinical Trials for Thymic Epithelial Tumors
  • Tell me Your Story, Patients and Physicians Open DIalog on Shared Experiences With EURACAN
  • Update on the Multidisciplinary Management of Thymic Carcinoma
  • Questions I’d like to ask my doctor – webinar recording

 

 

Many Awareness Flyers, Posters, Badges and Ribbons were Ordered

Medical professionals and group members ordered our informational awareness flyers and posters to distribute.  Many also ordered awareness badges and ribbons to wear and help raise awareness.

ThymicUK Members Helped to Spread Awareness on Facebook and Twitter

ThymicUK created a “Thymic Malignancy Awareness” badge for social media which was well adopted by members of ThymicUK and friends.  Lots of you donned the badge overlay on top of your profile picture and continue to do so today.

Find out how to add the Thymic Malignancy Awareness Twibbon to your Facebook or Twitter profile.

 

 

Fundraisers Small and Large Were Held in Support of ThymicUK

From one man’s mammoth journey cycling Land’s End to John o’Groats to a trampoline park’s second annual fundraiser in aid of ThymicUK and many more Facebook and birthday fundraisers besides.

May’s awareness month saw vital funds raised for ThymicUK.  We are extremely grateful for the support from group members and the wider public as every donation, however small, enables us to advocate for and support those affected by thymic cancers.

Thank you to everyone who took part in the awareness month, in whatever capacity.  Whether you gave support to another patient, attended a webinar or meeting, wore a badge/ribbon, distributed flyers, or took part in a fundraiser.  Together we have made great strides to raising awareness of thymic malignancies, providing advocacy and support, and helping to improve the outcomes of those affected by thymic cancers.

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