One of our aims is to address the feeling of isolation that can accompany diagnosis of a rare disease.

We are a community of patients with thymic cancers, family members and carers from across the UK. In addition to an active and growing Facebook group, we hold regular patient forums in the UK during the year at which we share experiences and information.

We usually have a medical professional attend each meeting to answer our questions and share the latest developments and/or other information that may be relevant to us.