A survey we conducted in late 2022 and early 2023 was presented at the 2023 BTOG conference in Belfast and won a runner-up prize.  Our poster received positive attention and recognition from professionals at the conference and helped to further increase awareness and support for thymic cancers and for our charity ThymicUK.  It is now available to view online.

Some notable findings from the research show that:

• 44% of patients were not informed that their thymic disease was malignant at time of diagnosis.
• 72% of patients perceived that their clinician did not have adequate experience of managing their disease.
• 56% of patients have no access to a CNS with knowledge of thymic cancers; of those, 55% received no signposting to any other source of information or support.

The survey not only highlights the inadequate and inequitable access to expert clinical advice and support across the nation, but also provides positive, actionable measures medical professionals can take to improve the experience for those with rare thymic epithelial tumours.

You can take a look at the full research poster: ‘The experience of patients with thymic epithelial tumours – A survey of patient perception of support from their clinical team and beyond’ below: