May 2022 is the first official thymic malignancy awareness month.
As rare cancers, thymic cancers need more awareness among medical doctors, clinicians and the wider public. We need this to help facilitate quicker and more accurate diagnoses, more research and ultimately more access to better treatments for individuals.
Some of the activities being planned include:
- webinars for patients
- webinars for doctors
- patient stories
- social media messages
- fundraising initiatives
- interviews with mediastinal disease experts
- and much much more!
1st May – 31st May 2022 – Karen’s 100km Walk Fundraiser for ThymicUK
ThymicUK chair and co-founder Karen Ruddock is walking 100km to help raise funds for ThymicUK throughout May. This is no small feat as Karen is still recovering from surgery last September to remove her left lung.
17th May 2022 – ESP Webinar for Pathologists
4pm – 5:00pm CEST / 2pm – 3pm GMT
“The European Society of Pathology would like to invite pathologists to a Bring your case! organized by the Thymic and Mediastinal Working Group.
At the meeting, virtual microscopic slides of interesting or difficult thymic/mediastinal tumors that we encountered in our routine work will be presented and discussed.
Our meeting is a unique opportunity to learn something new about these rare diseases.“
17th May 2022 – Open TUTOR: Conoscere per Capire – What comes next? | Italian Webinar for Patients
6pm – 7:30pm CEST / 4pm – 5:30pm GMT
“A dialogue with experts, to understand what the treatment of thymus tumors will entail. People who are diagnosed with thymoma or thymic carcinoma often face the first therapies almost automatically, without stopping to think about what comes “after”.
As time goes by, more and more questions may arise regarding the future and what may happen such as: How long will it take me to recover from surgery? Will there be relapses? What other therapies will I need for thymic carcinoma? What consequences could cancer have on my overall health and quality of life? What about autoimmune disease?
We will hear the experiences of patients who have been dealing with a thymoma or thymic carcinoma for some time and have the chance to ask questions and discuss with doctors and experts how to best manage ones everyday life when dealing with thymic tumors.”
17th May 2022 – Webinar for Physicians and Patients in Polish | ITMIG & PolGRP
7pm – 8:30pm CEST / 5pm – 6:30pm GMT
The International Thymic Malignancy Interest Group (ITMIG) and the Polish Lung Cancer Group (PolGRP) host a webinar for patients and physicians in POLISH. The webinar program covers the current diagnostic and therapeutic possibilities of thymic malignancies as well as the challenges related to the treatment of rare cancers in Poland.
19th May 2022 – BTOG webinar
9:30am – 4pm GMT
BTOG’s thymic malignancies update for 2022.
The program includes: Current UK status, managing the thymic pathway, early-stage and advanced disease treatments.
23rd May 2022 – Webinar for PATIENTS with EURACAN experts
2pm – 3pm GMT
“The webinar is aimed to share information and knowledge on thymic tumors giving patients the opportunity to have information directly from experts. It also aims to promote discussion among paramount multidisciplinary speakers and promote collaboration between patient and physicians all over Europe.”
24th May 2022 – ITMIG webinar for patients
2pm – 3pm GMT
“ITMIG experts will answer any questions you have wanted to ask your doctor, but you never had time to ask during your appointment.”
25th May 2022 – TNM Classification of Thymic Epithelial Tumours
5pm – 6:30pm GMT
“Promotion and circulation of the 8th edition UICC/AJCC staging system, proposed by the IASLC-ITMIG joint working group.”
26th May 2022 – The Clinical Nurse Specialist (CNS) role in your care
2pm – 3:30pm GMT
What is the role of the Clinical Nurse Specialist in your care? Join us at this patient webinar to hear from our two specialist nurses, Marrika & Marie, talk about their roles and how they can support you following your diagnosis of thymic cancer.
Both nurses have experience in thymic malignancy patients.Following their presentation, they will be taking questions.
Join us on Zoom
Meeting ID: 874 5187 9354
No registration required
How to get involved
Along with information from ITMIG, ThymicUK has put together an information flyer with the key information patients need to know to find out more about thymic cancers. Doctors are welcome to print this flyer to give to their patients. (Click the image to see more)
Download awareness poster